Parental Experience in Pediatric Care: A Qualitative Analysis of Interactions

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Liévin Ngulu Makengo
Imani Ramazani
Simon-Decap Ntela Mabakutuvangilanga

Abstract

This study, conducted at the Kikwit Nord General Reference Hospital (HGR) in the Democratic Republic of Congo, examines the
experience of parents of children hospitalized in pediatrics. The main objective is to analyze their perceptions of the quality of care,
interactions with medical staff, and difficulties encountered during care. A descriptive phenomenological methodology was use d, with
semi-structured interviews with parents selected for their relevant experience of pediatric care. The collected data were analyzed
thematically after validation of the collection tool through a pre-test. The results reveal several major challenges, including the high
costs of care and medications, as well as a lack of clear communication between parents and medical staff, generating uncertainty and
stress. Parents also deplore the lack of empathy and commitment on the part of caregivers. However, good coordination among medical
staff and easier access to information are perceived positively. Parents want more empathetic and continuous communication, as well
as greater involvement in medical decisions. Recommendations include a regular supply of medications and increased training for
caregivers in active listening and transparent communication. This study advocates for a more humane and collaborative approach to
pediatric care, with optimized resource management to sustainably improve the quality of care.

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